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Lichen Sclerosus: Any other women dealing with this disease?
Women's Health | Last Active: 1 day ago | Replies (448)Comment receiving replies
@julievansickle. Hi. I also have this. Did you ever get blisters? I do and i hate the clobetisol so much bc to me it stinks to high heaven. I dont use it every day like i used to and now i have scars. Toward the end of my marriage i couldn't even have sex. Im 65 and i know i will never again know the closeness that being in love can bring. It makes me so sad. I try to tell myself if that man is the right one it might happen. But you have to tell that man at some point in the beginning of your relationship about your condition right? How would someone find the courage to do that?
Sorry for bending your ear.
Best of luck, Judy
Replies to "@julievansickle. Hi. I also have this. Did you ever get blisters? I do and i hate..."
My best friend divorced after 42 years of marriage and she's suffered with this for decades now.
She met someone on Match.com and soon told him. As with most men of "a certain age", he was unable to perform sexually.
They had a beautiful beach wedding and have been married 5 years now, currently 73.
Don't give up hope. Put it right in your dating profile that you are not seeking a sexual partner for yourself but a demonstrative loving partner relationship in every other way. There are so many men, again, in our age range that cannot achieve erections because of the aging prostrate.
Good luck!!!
@danybegood1
I think you’re very brave hun x
@danybegood1
I have had lichen sclerosis for many years. I had been misdiagnosed several times. Herpes was a common one. The first time that one almost ended my marriage. About 4 years back I had the worst outbreak of my life. My dermatologist tried everything, including prayer. I would get white cracked skin with horrible blisters. It was the worst pain of my life (I went through labor with a ten pound baby with broken ribs) and this was worse. It lasted months. I couldn’t even walk. I used a sits bath to pee in. The thought of a bowel movement would send me into a panic. Every cream burned even more. Finally my doctor went old school. The only thing I could put on it was a mixture of Crisco and honey. I keep it by my toilet and use it anytime I get a small tear. She explained that they use it on babies because it is so mild, the honey helps healing and it also acts as a barrier so the urine doesn’t sting. She even had me try inserting Valium vaginally. Even better she started me on a medication called Nystatin. The white blistering was yeast gone wild. I have been taking one pill a day ever since and have not had a serious outbreak in years. For me it was a miracle.
I also understand the pain when having sex and the emotional pain of not having sex. I am married to the most amazing man of forty years. We have not had sex in years. The thought of any trauma that would cause an outbreak is overwhelming to me still.😢
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I find it odd that you find that Clobetasol smells bad. I have used it for many years and it never has any odour at all either just out of the tube or after applied.