← Return to Gastrointestinal Symptoms and Diets in EDS
Newsfeed PostNewsfeed Post in blog Ehlers-Danlos Syndrome
Gastrointestinal Symptoms and Diets in EDS 4 days ago | By Brii Sessions, EDS Moderator (@briisessions)Comment receiving replies
Replies to "I had been developing some reactions to certain color sauces and fried rice. But my blood..."
@lidiana Annatto/ achiote dark orange dye was my nemesis. The food industry touts it as natural. The Aztec and Maya used it as a laxative. It sure works on me!
Connect

Oh, Lidiana, I may have been meant to see this. I was diagnosed with cutaneous mastocytosis (Case #138 ever identified in America) back in the early to mid 1980s. After the Pfizer double jab, it escalated to Mast Cell Activation Syndrome-GI/D. Yep! Eighteen months of up to 9 episodes of diarrhea per day. Weight got alarmingly low. Suffered A-fib from loss of electrolytes. Went to the ER for IV slow drip infusion of an H2 Blocker. Took up to 8 doses of H1 and H2 Blockers, orally, every day. NOTHING helped until I learned from another sufferer that his genius of an allergist recommended DAO Enzyme (derived from desiccated beef or pork kidney). Dramatic improvement. Weight is back to perfect. Able to eat almost every food on the planet. I do have the rare reaction to certain ingredients such as an artificial sweetener or too many high histamine foods all in one day.
That beef or pork kidney may be the magic bullet for you. As to being diagnosed... Good luck! You have to be in an active "flare." If you are in an active flare you can't leave the house! Believe me. Uh... Don't know of any doctors or lab techs who make house calls.
Listen to your body. Keep a diary of everything you eat and any reaction.
I wish you the best. Me? I'm. Just. So. Grateful! Medicine is so primitive that, after the failure of the IV infusion of Famotidine, my last option was removal of my small intestines with a prognosis of another 3-1/2 to 4 years of life.
Thank God for that genius of an allergist. I may never learn his name but he has my gratitude!