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Malignant Peripheral Nerve Sheath Tumor

Sarcoma | Last Active: Dec 6, 2022 | Replies (13)
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@kelseympnst

Malignant peripheral nerve sheath tumor
I was just told the tumor in my upper spine is cancer. I hope to soon have it removed it’s it is a risky surgery the tumor is 7.7mm by 4.5mm by 2.5mm and wrapped around my vertebral artery and it has pushed my spine significantly. I celebrated my 22nd birthday 6 days ago. I am in severe pain everyday I wait for a call currently for surgery. I am scared. Please connect if you have had this cancer.

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Replies to "Malignant peripheral nerve sheath tumor I was just told the tumor in my upper spine is..."
Colleen Young, Connect Director | @colleenyoung | Dec 6, 2022

Hi @kelseympnst, welcome. I moved your post about malignant peripheral nerve sheath tumor (MPNST) to this recent and active discussion:
- Malignant Peripheral Nerve Sheath Tumor https://connect.mayoclinic.org/discussion/malignant-peripheral-nerve-sheath-tumor/

I did this so you can read previous posts and connect easily with members like @mbe111 @ricosoriano @godsgraceandmercy01 @kai2022 @stellacammarano @lizbhere @pkindron @julieparton, who also have experience with MPNST.

You may also be interested in connecting with other young adult with cancer in this group:
- Adolescent & Young Adult (AYA) Cancer support group https://connect.mayoclinic.org/group/adolescent-young-adult-aya-cancer/

Kelsey, I'm sorry to hear that you in constant pain every day. I bet you are scared. This isn't the birthday present you wanted. And it sucks. Are you expected to have surgery soon?

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