← Return to PMR and Hip, Back Pain

Discussion

PMR and Hip, Back Pain

Polymyalgia Rheumatica (PMR) | Last Active: Dec 11, 2022 | Replies (25)

Comment receiving replies
@raven1955

I would be very inclined to think that your back/hip pain is related to the PMR. Over the years I've had PMR I've never had flare up pain that showed up in the exact same location. Why does the inflammation move around like that? I don't have a clue but in my experience if I start experiencing unusual pain associated with muscles or near joints I tend to look at my prednisone dose first. Each person is different but prednisone reductions of every 3-4 weeks never worked on me. I might not have a flare up immediately but the inflammation would build up and the pain would greet me once again, usually at a new location. A couple months ago I had gotten down to 3.5 mg of prednisone but started to experience pain in my neck muscles and one shoulder. After a few weeks I finally bit the bullet and jacked the dose up to 10 mg for a five days. That cleared out the inflammation/pain and then I brought my dose back down to 4.5 mg over a couple weeks. The 3.5 dose was likely just a little too low to be effective but it took time for the inflammation to build up to the point of being miserable again. Thankfully I have a rheumy who agrees that I understand how to handle my prednisone and lets me adjust the dose as needed. It's not for everyone, but I use a very slow reduction schedule that has worked for me for the most part. However, it's a constant search for the lowest EFFECTIVE prednisone dose, not a relentless reduction to zero. Here's the link for the "Dead Slow and Nearly Stop" reduction schedule I use, from the Health Unlocked website for anyone that's interested:
https://healthunlocked.com/pmrgcauk/posts/131189593/dead-slow-and-nearly-stop-reduction-plan

Jump to this post


Replies to "I would be very inclined to think that your back/hip pain is related to the PMR...."

Thank you. I’ve done a slow taper too. Down to zero, because I hate taking prednisone and I hate having PMR. It really has messed up my life. Anyway it all came back in 2 months.

Your post is really helpful to me thanks. I’ve gone from 15mg to 20mg back to 15 mg and I’ve been noticing pain in different areas from where I first had the pain. I still have pain behind my knees if I try to kneel down. Now I also have pain on the insides of my knees which is new and a bit bizarre. I wasn’t sure if it was a flare but you’ve made me realise the inflammation can move around. I guess that’s what it is then. I don’t really want to go back to 20mg- but will see my Rheumatologist in a couple of weeks and discuss. Thanks