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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 1 day ago | Replies (6165)

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@phoenix29412

Thank you John.
In my frustration I do use 'Dr. Google", as a resource and source of information when I feel as if I'm fumbling in the dark. Right? My husband is a cancer researcher and every piece of information I find my husband always asks me "Where did you find that? What source?" so I always also look up Mayo Clinic and Cleveland Clinic as well.
I've joined several FaceBook support groups where real people are trying to deal with similar problems. It's heartbreaking.
I'm going through my medications trying to weed out ones that may be contributing to depleted B12 (perhaps the main culprit for this left side sensation loss and tingling).
I'm taking 2 tabs of methotrexate (down from 4) a week and my husband said that the people with neuropathy and methotrexate are taking much bigger amounts.
My GI doctor put me on Prilosec (a proton pump inhibitor which I am NOT taking and Pepcid. I have very sporadic reflux. No appetite although I do get hungry once in a while. Lost smell and taste years ago and am on Marinol - it helps me to force myself to eat.
I'm frightened that it is a malabsorption issue. Intrinsic factor?
Thank you for the resources. And thanks for listening.

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Replies to "Thank you John. In my frustration I do use 'Dr. Google", as a resource and source..."

@phoenix29412, A couple of more of my favorite sites if you haven't already found them...

Google Scholar for medical research information (can sort by date):
-- https://scholar.google.com/

FDA's Health Fraud Page
https://www.fda.gov/ForConsumers/ProtectYourself/HealthFraud/ucm539101.htm

NIH's National Center for Complementary and Integrative Health (NCCIH) which offers guidance about integrative health and how to evaluate it.
https://nccih.nih.gov/health/decisions
https://www.nccih.nih.gov/health/pain