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Idiopathic Small Fiber Neuropathy Research

Neuropathy | Last Active: Jun 19 12:24pm | Replies (135)

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@allwheeldrive

his was my diagnosis about 18 years ago. I was told by the neurologist that this won't kill you; see you in 20 years!
My diminishing sense of balance and my lack of strength and stamina in all physical activities are the predominant symptoms causing me to readjust my lifestyle.
Any tips on how to keep more active and safe? I also have osteopenia, high blood pressure and persistent constipation. Does PN affect the muscles of the digestive system?

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Replies to "his was my diagnosis about 18 years ago. I was told by the neurologist that this..."

@allwheeldrive
Depending on the type you have it can affect virtually everything.
Nerves, muscles, one or more, heart and other internal organs, sexual function, weakness to paralysis, constipation, digestion problems and the list is nearly if not endless since there are over 100 types of Neuropathy.
Best of luck,
Jake

Hello @allwheeldrive and welcome to Mayo Clinic Connect. I thought you might benefit from joining a current discussion on the topic of Idiopathic SFN, so you will notice I have moved your posts here:
- Idiopathic Small Fiber Neuropathy Research: https://connect.mayoclinic.org/discussion/mayo-clinic-and-idiopathic-small-fiber-neuropathy-research/

Members such as @lecowing @bb0753 and @dot1 have shared about their symptoms and experiences.

Have you considered a second opinion or would you prefer to go back to the neurologist who originally diagnosed you?