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Newly diagnosed with NET in liver

Neuroendocrine Tumors (NETs) | Last Active: Dec 11, 2022 | Replies (24)
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@reallywells

hi just join. really scare my urine test was normal. but have had symptoms for two years. My cga was high 122 and 152. constant stomach pain after c diff and diarrhea. been going to gastro for 2 years changed. cant eat have lost alot of weigh. Have had 12 ct scan nothing wrong. now having pet scan tomorrow really scared Im goig to die with this. Need support badly thanks beverly. Has anyone had a high cga with out cancer and tumors

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Replies to "hi just join. really scare my urine test was normal. but have had symptoms for two..."
Colleen Young, Connect Director | @colleenyoung | Dec 11, 2022

Hi @reallywells
Although CgA is the most widely used tumor marker in patients with a suspected or confirmed neuroendocrine tumor, CgA testing has limitations.

I think you'll find the information from this website helpful.
– Chromogranin A https://www.testing.com/tests/chromogranin/
Here's an excerpt:
"CgA levels can be elevated in a range of health conditions other than neuroendocrine tumors. For example, CgA levels may increase in people with irritable bowel disease, chronic hepatitis, liver failure, inflammatory diseases, and renal failure. Several medications can also cause an elevation in CgA levels.

As a result, CgA testing for neuroendocrine tumors may produce an elevated result that shows signs of a NET when a person does not actually have this kind of tumor.

Multiple laboratory tests are available to measure the amount of chromogranin A in the blood. Results can vary depending on the test that is used. If CgA levels are being monitored over time, it is important that the same test method be used each time."

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