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Lobular Breast Cancer: Let's share and support each other
Breast Cancer | Last Active: Nov 12 5:54am | Replies (395)Comment receiving replies
May I ask what your "treatments" were? I had a lumpectomy for ILC 11/30 and just found out negative node - very relieved! I'm 57yrs - 1.8 cm and grade 2 with margins positive for atypical which I guess is fine as surgeon said no need for additional surgery. Next appt in 2 weeks with a radiation oncologist and should have oncotype tests back by then. Did you get 2 opinions regarding radiation. I'm near Boston so I have a few options which is great but all so confusing as it the docs make it sound like it is very routine. I dread the anti hormone after reading about side effects but so glad to hear you are hanging in! Any advice appreciated. Thanks so much!
Replies to "May I ask what your "treatments" were? I had a lumpectomy for ILC 11/30 and just..."
So glad to hear that margins were clear as well as lymph nodes.
Radiation is the standard protocol for most all those who choose to have a lumpectomy. I had 20 rounds and did well.
I’ve been on an AI for over three years now and I’ve had very little side effects.
I was diagnosed at 60 and now I’m 64. ♥️
Sue Ellen, what options were you offered re: radiation? I’m meeting with the radiation oncologist next week and want to request the shortest, least invasive option that still kills the cancer. Grandbaby expected mid March! That may not even be an option. I have ILC Stg 1 b and will have a lumpectomy (2 cm x 1cm by 1.5 cm) and immediate reconstruction at MD Anderson, followed by radiation. I’m really nervous about all of it! Any possible options that I can request re: radiation would be appreciated. I dread the hormone-blocking meds as well…Thanks for your sharing your story! I hope all of it goes well for you!❤️
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My ultrasound following mammo showed the lobular tumor. A biopsy confirmed it and it was a rather large oblong shape 2 x 3 cm. I had chemo before a mastectomy, then radiation and more chemo. I started chemo in July of 21 and finished August of this year. My cancer was stage 2 based of its size. I had one lymph node removed and it was not cancerous. I did not seek a second opinion regarding radiation. I just wanted to get finished! I did read about treatments and radiation was suggested because the pathology showed live tumor cells in the removed tissue.
My cancer was HER 2 + and hormone negative so no anti-hormones for me.
Good luck with your treatments, I feared radiation the most and was surprised that it seemed to be the easiest to endure. It has tightened my skin and may cause issues later, but I'm living each day as it comes. Who knows what the future will bring anyway.