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GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)
Polymyalgia Rheumatica (PMR) | Last Active: Oct 25, 2024 | Replies (277)Comment receiving replies
Hello @pmm2001, Welcome to Connect. You will notice that we moved your post into an existing discussion on the same topic here:
-- GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica):
https://connect.mayoclinic.org/discussion/temporal-arteritis-1/
You mentioned the scalp sensitivity and jaw pain seem to be increasing while tapering.
@tsc and others with GCA experience may have experience to share with you.
Both my primary care and rheumatologist were always asking me if I had scalp tenderness or pain in the temple area along with other symptoms due to the risk of GCA and the importance of addressing the symptoms. Has your doctor been dismissive about your scalp and jaw pain symptoms? If so, I would press to see a specialist or rheumatologist.
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Hi @pmm2001, I didn't have any jaw pain with GCA, but I did have scalp tenderness that lasted a few weeks. It did not come back with tapering. I had some problems with vision before I started prednisone. A physician friend told me if that ever recurred to go to an emergency room immediately. I've been off prednisone a few months now, with nothing but normal aches and pains. I hope the doctor treating you for GCA is not dismissive of your scalp tenderness and jaw pain. They could be indicators that your dosage of prednisone needs to be increased for a while. Take care.