← Return to Living with Neuropathy - Welcome to the group

Discussion

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 1 hour ago | Replies (6012)
Comment receiving replies
@johnbishop

@phoenix29412, My best advice is to keep doing what you are doing - asking questions. I would be a little irritated myself if my PCP was condescending when asked a simple question which is part of their job to explain to their patient. I might be condescending right back and ask - would you rather I look to Dr. Google to find my answers? Then explain that you want to learn as much as you can about your health so that you can make more informed decisions.

Here's a good article on B12 deficiency with reference links to studies that you might find helpful.
-- 9 Signs and Symptoms of Vitamin B12 Deficiency:
https://www.healthline.com/nutrition/vitamin-b12-deficiency-symptoms

Also, here are a couple of "tools" you may want to add to your working with doctors arsenal:
-- Tools for the Visit: https://patientrevolution.org/visit-tools
-- Communication Barriers: https://patientrevolution.org/barriers

Jump to this post

Replies to "@phoenix29412, My best advice is to keep doing what you are doing - asking questions. I..."
phoenix29412 | @phoenix29412 | Dec 6, 2022

Thank you John.
In my frustration I do use 'Dr. Google", as a resource and source of information when I feel as if I'm fumbling in the dark. Right? My husband is a cancer researcher and every piece of information I find my husband always asks me "Where did you find that? What source?" so I always also look up Mayo Clinic and Cleveland Clinic as well.
I've joined several FaceBook support groups where real people are trying to deal with similar problems. It's heartbreaking.
I'm going through my medications trying to weed out ones that may be contributing to depleted B12 (perhaps the main culprit for this left side sensation loss and tingling).
I'm taking 2 tabs of methotrexate (down from 4) a week and my husband said that the people with neuropathy and methotrexate are taking much bigger amounts.
My GI doctor put me on Prilosec (a proton pump inhibitor which I am NOT taking and Pepcid. I have very sporadic reflux. No appetite although I do get hungry once in a while. Lost smell and taste years ago and am on Marinol - it helps me to force myself to eat.
I'm frightened that it is a malabsorption issue. Intrinsic factor?
Thank you for the resources. And thanks for listening.

VIEW AND REPLY