Hi John, I am glad that I found this page and for your reply. To begin, I had a severe case of Lyme Meningitis years ago, so when PMR reared its ugly head, my wife and I thought we were dealing with Lyme. After about two months of trying to figure out what it was, I had to walk my daughter down the aisle to get married. My wife and I both went to see the doctor as my conditioned had worsened and the doxycycline was just making me sick. Still on the Lyme thing, we thought I may intravenous treatment again. After my daughter’s wedding, I went about 3 weeks before asking my wife to bring me to the hospital. There they gave me a spinal tap, did not feel it, to test to see if the Lyme had come back. My condition at that point was that I could barely stand, or walk, but had to go to the bathroom about every 20 minutes? Anyway, they had to roll me on a bed once in the hospital, and I loss a lot of muscle. A year and a half later, I have not fully gained my strength, and sometimes I am stronger that other times. Anyway, in the hospital they gave me pain med, intravenous for the Lyme, and 1000mg of prednisone- I later confirmed with my rheumatologist. When I came home, they taken me to 40 mg a day it took me about a month to see a rheumatologist, and then he kept me on the 40 and slowly weaned me down. Currently I am at 4 mg and struggling at times our goal is to keep me at 4 mg for about a month in the last eight months. I came down from about 11 or 12 milligrams, and it was a roller coaster ride. Every time I’ve made a change with the exception of of one to twice where it was easier. In addition, if I forget to take my medicine, it is like running into a Stonewall. My diet is pretty decent and I’m trying to stay away from things inflammatory I have a question for you is beer inflammatory? If so, I have tried to cut down a fair amount. finally I work for a pharma company as an IT generalist and hence was somewhat reluctant to talk about it publicly. I hope this answers some of your questions, I struggled to submit a Vaers report but did so yesterday. After I got better, not knowing, I took a third shot, Moderna. The only thing that happened here was I got a lot of breakout on my back side - bumps - pimple like, and they would break and bleed. It was not monkeypox, but I had to go see a doctor then Dermatologist who gave me medicine and it eventually went away - do I know if it was the third shot - not sure.
Love your profile photo @npostusa! You've had quite a struggle and it sounds like you are doing all the right things to help. Not only that you helped me by asking is beer inflammatory. I didn't have a clue but I stopped all alcohol after being diagnosed with small fiber peripheral neuropathy as I know that alcohol can make neuropathy worse. Thought I would miss the beer but I don't. Back to your question, I always try to learn at least one new thing a day. Admittedly, I sometimes relearn the same thing more than once 🙂 Beer is good for you!
"Clinical studies have suggested that the moderate consumption of beer is beneficial for human health, mainly due to the phenolic compounds with antioxidant and anti-inflammatory properties."
-- Redox and Anti-Inflammatory Properties from Hop Components in Beer-Related to Neuroprotection: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8226943/
What helped me when tapering down on prednisone was keeping a daily log and writing down my level of pain when I got up in the morning and what dose I was taking that day.
It also helped me when I was following up with my doctor or rheumatologist on any tapering problems I had.
Have you tried keeping a daily log of your pain and dosage?