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blood in urine with no cause

Kidney & Bladder | Last Active: Jul 3, 2020 | Replies (27)

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@stormygirl71

I experienced blood in my urine to the point it looked like I was peeing black cherry koolaid about 6 years ago. In fear of what it was I went straight to my doctor. I had no pain in my lower back area, the first thought my doctor had was a major kidney infection. But with no back pain or urinary tract pain or bladder pain the concern faded for kidney trouble. I was diagnosed with uti's nearly every visit to the doctor my entire life, even if I wasnt being seen for urinary issue. after that one episode of blood in my urine and taking antibiotics, I hadnt noticed blood in my urine again until late 2008. I had severe pain urinating and could urinate less and less as the pain got worse. I felt as if I had the urgency to pee constantly but could only pee very little when i tried to go. When the pain reached the point that I was getting dizzy from the pain while trying to urinate I decided to contact a urologist myself and make an appt. after all the screening and process of elimination I was diagnosed with inner cisticial systitis. My blader lining deteriorates and its a condition one is born with, a defect in my bladder lining. I had to have surgery to have my bladder expanded with gas and 5 painful weeks of post surgury treatments. The condition is terminal but not fatal. The surgury is suposed to be repeated every 2 to 3 yrs. Very costly surgery too, so I hope you have good insurance. I have not had a second surgery due to the costs, but you can minimize the painful urination through a good diet free of acidic foods. Since I can not afford another surgury at this time, my doctor prescribes me antibiotics which usually get rid of the painful episodes.
hope this helps

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Replies to "I experienced blood in my urine to the point it looked like I was peeing black..."

Thanks for the reply. Last night I had a severe kidney episode which ended in passing a stone and while in the ER they discovered I had a urinary tract infection. I will be on antibiotics for 10 days and if the blood is still present my next step is to see a gyn doctor. The urologists I have seen don't seem to be concerned but they don't look any farther than the CT, MRI and cystoscope along with all the urine samples that all come up negative. I want to know what is going on, it drives me insane to see blood everytime I pee. Again, thanks for answering.

@gmhelin, I like your persistence in asking your medical team to track down the source of your problem. In my case, I politely and patiently pressed the doctors to look for basic causes, not simply control the symptoms which hides the causes.

It's interesting, though, that you have passed a kidney stone through a bout with UTI, followed by a 10-day treatment with antibiotics. I think you're on the way to resolution of your problem, and I hope you don't remain stressed about it. It may take the full 10 days. I'd consider asking my urologist whether a gynecologist examination might be a good next step; getting doctors together for consulting with each other has been helpful to me.

My urologist is very thorough when examining me for urinary blood, which colors my urine but is not "frank" (that is, not thick blood) and rather dilute. Occasional blood clots about the size of a pea come out, but those don't bother me greatly either. His advice is to go to the ER if I experience frank bleeding, but to relax at home with any less blood.

Martin