← Return to Prostate cancer surgery: What can I expect & prepare for?

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@boogs28

I am also 56 years old and was diagnosed in the first week of September with an initial PSA of 32. I was never encouraged to get tested, but decided to after a period of time with decreased urine flow. My Gleason's were 9's & 10's, so the Dr. very much expected metastatis (even if he didn't so much as say it out loud). Fortunately, everything was localized. After surgery, it was revealed that roughly 80% of my gland had been transformed to a yellowish tumorous material and that the cancer was tying to migrate. I had robotic prostatectomy on Nov. 9 and I am approaching my 4-week point. Most likely due to the nature of deterioration of the gland and the need to remove all the marginal activity (10 years ago I would've been stage 4). my recovery has been pretty rough. I still can't sit up. I leak when I get off the couch or out of bed. I've also had incredible pain in the unit (just typing it in makes the scro recoil). Dr. has been a wizard and has finally gotten some of the spasms to subside (or at lease decrease in pain intensity (valium and myrbetriq - I refused to take the NORCO - see other comments here about constipation). I take multiple sitz baths every day to alleviate some of the perineal pressure (still jumps to a 8-9 on the pain scale every evening). Needless to say, my experience has been rough. My path report started off with the caveat, "this is a difficult case." I will be meeting up with my wizard (doctor) in the next few weeks to schedule initial radiation. Get used to being wet with a tough case, but follow the rehab recommendations from the Dr. Do the Kegels and be sure to do them correctly. I got frustrated and went whole hog and probably cost my self more pain than gain. After watching a tutorial from an English woman on youtube, I've learned to start slow and work on making progress. Be diligent and be strong and don't hesitate to let it out when it becomes unbearable. If you can do the sttoic approach like my father-in-law did, then more power to you. that was therapeutic. thanks.

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Replies to "I am also 56 years old and was diagnosed in the first week of September with..."

Oh my, thanks goodness you decided to have your PSA checked and it is an absolute miracle that your prostate cancer is localized. So glad that you did your radical prostatectomy at Mayo - From my investigations of prostate cancer and RP, the doctor's ability directly correlates with surgery success. Sounds like your margins were positive, requiring the doctor to take additional material surrounding the prostate gland.
Sounds like you are doing great, especially given how advanced your prostate cancer was at the time of surgery. Good luck with your recovery and and hope all goes well with the radiation treatments!!

Ask about getting on Zolodex Its important to stop testosterone the fertilizer of pc

With regards to your Kegels. Ask your Dr. to write a prescription for urinary physical therapy. They will hook up a tester to you to verify you are doing kegels correctly. I was lost also on how to do them before going into PT. Good luck with everything.