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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: May 26 10:50am | Replies (6004)

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@artscaping

Good evening @grannymary7077, welcome to Connect and our neuropathy group. I think you can do a lot to help yourself with your neuropathy symptoms. I have had SFN (small fiber neuropathy) since 2013 when I was diagnosed via a punch skin biopsy. Mine is rather severe without enough nerve cells to do a good job of creating feelings in my body and especially in my feet. What started with my toes in the right foot has now invaded both feet and is continuing to march right on up my leg. Since the diagnosis, I have been through quite a few prescribed medications and custom lidocaine topicals created by a specialist pharmacy as guided by my neurologist. These worked quite well until my condition went beyond the capabilities of those creations.

Since then I have settled on two treatment options plus some special exercises for strength and balance. First, I use one of two medical cannabis topical balms. One is for acute pain and the other is for chronic pain. Both contain CBD and THC at different levels.

At this point, I also have my feet treated twice a week by an MFR (myofascial release) therapist so that I can continue to drive. Have you heard of or read about MFR yet?

Your approach is excellent. Read, research, and study everything appropriate for your condition. Knowledge is power and you will benefit tremendously from the experience. I am happy to help you on this journey.

What are you most concerned about at this time?

May you be free of suffering and the causes of suffering.
Chris

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Replies to "Good evening @grannymary7077, welcome to Connect and our neuropathy group. I think you can do a..."

Thanks Chris, At this point I would like to find a way to walk around and sleep without hurting. It is only my toes right now. I had tingling for several years without thinking about neuropathy because it only bothered me at night. Now, the burning bothers me all the time. I tried the hemp cream today, and it works for a few hours. I think I read that I can use it several times a day. I will give the other creams a try too, maybe alternating several on different days. I have also ordered shoes recommended by someone in the group. I have the device sold by Amazon that keeps the bedclothes off my feet at night. When nothing else works, ice helps. Mary