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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 41 minutes ago | Replies (845)

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@erika42

Hi everyone. I was diagnosed in September with a malignant peripheral nerve sheath tumor on my lumbar spine. I completed 5 weeks of radiation a week ago, then had an MRI a few days ago which showed the tumor is a few cm larger than it was in Sept. Surgery is next but I have to wait for the skin on my back to heal from the radiation and also need a pacemaker because of a low heart rate.

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Replies to "Hi everyone. I was diagnosed in September with a malignant peripheral nerve sheath tumor on my..."

Prayers to you and yours.
It is so disappointing to see cm increase!!!

Hi @erika42, you may wish to connect with others living with malignant peripheral nerve sheath tumor (MPNST) in this recent and active discussion:
– Malignant Peripheral Nerve Sheath Tumor https://connect.mayoclinic.org/discussion/malignant-peripheral-nerve-sheath-tumor/