Hi James, my name is Regina, I was diagnosed with paget's by accident. I had a problem with my right hip, thought it was arthritis, X-ray showed paget's in my left femur. I was put on meds right away which was okay, but the original problem was my right hip. Long story short, I found out it's a European disease, mainly British, Scottish descendent and some other areas. It affects men more than women. Being black, it came as a surprise, but having Scottish descendent I was able to point a finger. It is a heredity thing, therefore, I was surprised because I had never heard of it before and knowing previous family members was out of the question. I'm presently learning more about it, I do not know how long my bones were growing in my left leg, but I have noticed my left leg is bigger than my right left (one fat, one skinny), I do not like it. I have an upcoming appointment and I want to get to the bottom of this, I do not want to go walking and suddenly fall due to a fracture femur. We can exchange info since we are both new to this.