Connect
Discussion
Comment receiving replies
Replies to "Thanks you all for the hugs and likes. We're in this together. I was thinking that..."
MAC & Bronchiectasis | Last Active: May 5, 2023 | Replies (38)
Comment receiving replies
Thanks you all for the hugs and likes. We're in this together. I was thinking that it would be great to have a virtual hug day for people with NTM, for more awareness in our communities and to remind each other we are not alone in these struggles. But I don't know ANYTHING about how to do that. I didn't grow up in the computer age. I will suggest it to NTMir website and see what happens...in the meantime...hugs back at you!!!
Replies to "Thanks you all for the hugs and likes. We're in this together. I was thinking that..."
Connect
Hi Nothland, I have been on big 3 for two years and plus amikacin. Amikacin really helped me turn negative but I can’t tolerate it after a couple of try. Now I have experiencing back pain/ rib pain, and the night sweating. Would you mind sharing your symptoms before having the surgery? I am only 90 pounds BMI 17.5, not sure whether I can afford the surgery in this physical condition. Would love to learn your experience. Also is your doctor a Mayo doctor? I am thinking to have a visit there. Not sure which doctor I should make an appointment with. Your experience would be really appreciated!