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Struggling to get a diagonosis

Neuropathy | Last Active: Dec 7, 2022 | Replies (25)

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@kdallen

Hello,

Are you seeing a neurologist yet ? I will say that I get limited help for the neurology professionals I see. I get the most help from my gp. Don’t give up, keep looking for a Dr. That will listen. The bottom line- they rule out what they consider “serious” issues them once they diagnose neuropathy they can only treat the symptoms. Unless you are diabetic they is no efforts made to determine what causes the neuropathy. So- keep looking for a doc who listens to you. You might also see if you can get a pain management referral.

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Replies to "Hello, Are you seeing a neurologist yet ? I will say that I get limited help..."

Hi there not as yet, Id imagine a good wait here to see one. I’ve read as you said some maybe of no help, you’d think specialists who specialise in nerves would figure things out quickly. I do have a podiatrist appointment Friday maybe shed some light on things. The burning has settled a good deal the last 4 days, no complaints there. But i am not going to google to much, it starts that health anxiety on a roll. I am still going with Stenosis and disc bulges till i know better. Thanks 😀

The origin of my neuropathy is having received chemo for breast cancer. It started immediately after about 2 months into it. Not only my feet, but my finger tips also.

I have never complained about this condition but since diagnosis of PMR and taking prednisone I have struggled with terrible body aches, shoulders too. I am now taking prednisone, 4 mg, started out with 15 mg and my rheumologist has been shrinking the dosage but since bringing it down to 3 mg, I just started to hurt again so back up to 4 mg. I don't want to take any more meds than I absolutely have to, and prednisone certainly isn't a drug that I want to continue taking for any length of time.