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Liver disease itching: What helps?

Transplants | Last Active: Nov 22, 2023 | Replies (155)

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@rosemarya

It's been a while - and I am wondering if anyone has any updates related to your itching?
@gerryp, @btg, @ugadawg1067, @crystalfaye, @katebw, -Have you found any relief? What is working for you?

@patrickski98 - What is your experience with itching? Is it new or ongoing?

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Replies to "It's been a while - and I am wondering if anyone has any updates related to..."

I had some itching pre-transplant but it has gotten a little worse afterward. Not intolerable just inconvenient. Any remedies are greatly appreciated.

I had terrible itching for several months pre transplant, and even worse itching post transplant, maybe 2 or 3 months. Now I can’t remember. My transplant was 13 months ago. What helped me endure was the over the counter lotion Sarna extra strength with menthol, moisturizing a lot with regular lotion, and I also took sleeping pills (trazodone, and then admittedly cannabis gummies which I can purchase legally where I live- my liver team ok’d this)- I really needed help to sleep so I would wake up less with panic itching. I can’t remember when it stopped completely. I also literally had to scratch my itches which were mostly out of reach on my back (how unfair!) so I would line up my boyfriend, my mother, sister etc for back scratch sessions! It makes me laugh now but it was completely unfunny then. Some say benedryl helps, even small doses but I didn’t try as I don’t like how I feel when I take it. Good lotions, good sleep, deliberate help to calm you or scratch your itches! Oh and also, drink lots and lots of water.

Good morning. My itching was very intense pre-transplant, but has thankfully mostly gone away post-transplant. I tried everything to relieve it. I found Sarna lotion helped and ice packs - especially for my back overnight. My wife purchased large ice packs on Amazon and we would wrap a towel around them to diffuse the cold somewhat and make it tolerable. I also found that witch hazel would provide temporary relief. I also would wear cotton gloves at night to prevent breaking my skin. My wife also got these on Amazon. Benadryl and other anti-histamines did not really work for me.