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Anyone diagnosed with Hemangiopericytoma (solid fibrous tumor)?

Cancer | Last Active: Mar 4 3:51pm | Replies (10)
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@mollyelisa

How can you find a doctor that has experience treating this condition? My 31 year old niece has been diagnosed with an SFT near her spine but there seem to be few answers & we are having difficulty getting into M.D. Anderson where she was referred.

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Replies to "How can you find a doctor that has experience treating this condition? My 31 year old..."
Colleen Young, Connect Director | @colleenyoung | Dec 7, 2022

@mollyelisa, I'm sorry to hear that your niece is having challenges getting into MD Anderson. Might she consider Mayo Clinic?

Mayo Clinic has a special 48-hour access program for brain tumors. Experts at the Mayo Clinic can help navigate the healthcare journey, answer questions and guide her through the treatment plan. When you call at any of our 3 campuses, you will be offered an appointment within 48 hours. Be sure to mention the Brain Tumor 48-hour Access program.

Here are the numbers for all 3 Mayo Clinic locations: http://mayocl.in/1mtmR63

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