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Anyone diagnosed with Hemangiopericytoma (solid fibrous tumor)?
Cancer | Last Active: 1 day ago | Replies (13)Comment receiving replies
How can you find a doctor that has experience treating this condition? My 31 year old niece has been diagnosed with an SFT near her spine but there seem to be few answers & we are having difficulty getting into M.D. Anderson where she was referred.
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I was recently told I have something very similar to this in my left paraspinal muscle. Doctors cannot agree on what it is and it’s super vascular so no one wants to biopsy it. How is your niece doing and was she ever seen by MD Anderson? I’m from Texas and it’s proving to be very difficult to see the doctor I was told would be the one that would be able to help.
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@mollyelisa, I'm sorry to hear that your niece is having challenges getting into MD Anderson. Might she consider Mayo Clinic?
Mayo Clinic has a special 48-hour access program for brain tumors. Experts at the Mayo Clinic can help navigate the healthcare journey, answer questions and guide her through the treatment plan. When you call at any of our 3 campuses, you will be offered an appointment within 48 hours. Be sure to mention the Brain Tumor 48-hour Access program.
Here are the numbers for all 3 Mayo Clinic locations: http://mayocl.in/1mtmR63