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Spouse with cognitive problems and finances

Caregivers: Dementia | Last Active: Dec 30, 2022 | Replies (290)

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@crankyyankee

Hi Julie - My husband (91)was diagnosed in fall 2019 with MCI. His regression has been mostly in the short term memory area (e.g. 3 hours after Thanksgiving he remembered nothing about it - who was there, that we sat for an hour and a half at a festive table - but he thoroughly enjoyed it while it was going on. His neurologist, at the beginning, recommended the psychological evaluation, for which we got up at the crack of dawn for an 8am appt. at Yale in New Haven, 1/2 hour away. 20 minutes into the evaluation he shut it down, saying it was insulting and he wasn't going to do it. Upon consideration, I wondered if this wasn't more about neurology research than any specific help for him (since they can't "cure" dementia). He has being wearing the Exelon patch daily and that has helped him, but the benefit seems to be waning. He spent 4 days in the hospital in Sept. with iron deficiency and a gazillion tests to see why he had tachycardia and I had to be there as much of the time as possible because he could not remember what the symptoms were that got him here. Sigh, fortunately he is not belligerent and his appetite has returned after the iron deficiency was addressed. It was clear that the 4 days in the hospital had a detrimental effect on him, and I am eternally grateful to the hospitalist who asked if I could manage him at home: dementia patients waking up to unfamiliar sights and sounds really sets them back. I don't have an answer for you, but I wanted to say that my mindset now is - as long as he's safe, I'm okay with whatever he wants to do: this isn't about me. Sit all day staring into space, ruminating about his past life, eating things that in younger days were NOT on the menu - bacon, full-fat ice cream, cookies, etc? OK by me. He's driving the bus and I'm just making sure he doesn't hurt himself.

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Replies to "Hi Julie - My husband (91)was diagnosed in fall 2019 with MCI. His regression has been..."

Bill is eating and drinking very little. This morning he managed a half piece of French Toast and most of a cup of hot cocoa. For lunch he wanted a Twinkie. His weight loss is staggering. He is very frail (89) and he won't do anything to help himself. Doctors say to make him get up and get his own water - but watching him trying to move is painful for me and doesn't seem to help him. So I feel guilty if I get him his water and guilty if I don't get it. One hospice assessor that he should be on hospice but the doctor on duty said dying of old age wouldn't qualify (according to Medicare the weight loss and falls and general failures could be a trigger. ) At the moment I'm trying for at home care as trying to get him out at all is almost impossible. He also doesn't want to see or talk to family or friends.
One of his funny things the other day was he couldn't remember the name of something he wanted to eat but it was in a can with white stuff in the middle. I immediately guessed Twinkie and he was delighted I knew what he was talking about. His dementia seems to effect mechanical things a lot. His vocabulary is still fantastic (at one point he was an English teacher).