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Falling for no apparent reason: Any ideas?

Brain & Nervous System | Last Active: Oct 15 11:16am | Replies (201)

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@dbluttenb

Ask your Dr. About a loss of balance called ataxia. My ataxia is caused by a rare brain disease called superficial siderosis caused by a brain trauma in the past up to 30 years ago. It can also be caused by a continuous brain or spinal cord leak. This causes blood in your brain to oxidize over time to hemosiderin (think of rust) interfering brain signals. I went through 3 neurologists before they found it and he had never heard it, the radiologist found it. There are a whole host of other symptoms that can be there, like hearing loss, eyesight, sense of smell, etc. , but loss of balance is primary. You can find out more on the website “Living with Superficial Siderosis “ there are less than 300 cases in the US. That’s why no one knows about it. I feel for you if you have it because it has no cure, but you can learn to live with it. Exercise helps, use a treadmill so you don’t fall down. (Of course, ask your Dr. first) Good luck.

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Replies to "Ask your Dr. About a loss of balance called ataxia. My ataxia is caused by a..."

I'm sorry for your situation which sounds quite difficult and having to go through 3 neurologists but thankfully you finally found the right one and thank you for the information. I got up today, very slowly and I was fine. I will watch it for a few more days and if things are OK, I might just call my GP for her opinion. Take care! Nancy