← Return to Mac with Bronchiectasis and collapsed middle lobe

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@busybeans

I've been a patient at NJH since 2011 and have always received exemplary care. I have cleared 5 strains of NTM with airway clearance and am now left with Kansasii and Bronchiectasis. I have tried and failed the Big 3 twice. On my last visit in June, my doctor recommended trying the Big 3 again as well as robotic removal of my deflated right middle lobe (where MAC is probably brewing and the cause of my hemoptysis) to be done in Denver. When I returned to my hometown, I sought the opinion of both an Infectious Disease specialist (re: the Big 3) and a pulmonologist (re: surgery). The ID doctor said my body would not tolerate the drugs so he wouldn't prescribe them. Two days later the pulmonologist said surgery would be an absolute last resort as the ramifications can be quite difficult to recover from. I am not on O2; I walk 3-4 miles a day; and I have a O2 of around 93-94. As a 70 year old woman, I am not - at least not at this point - willing to undergo surgery. I have researched this endlessly and have come to the conclusion that for ME surgery is not in my best interest. I've hesitated to share this but this website is about sharing our own experience. I am not in any way suggesting this is what anyone else should do. I'll be praying for you. This is a difficult road we travel.

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Replies to "I've been a patient at NJH since 2011 and have always received exemplary care. I have..."

Looking into a surgical procedure to deal with my MAC. Wondering if anyone knows one that could just clean out my lungs from the massive amount of deep congestion activity. I'm open to all ideas!