Connect
← Return to Radioembolization for pancreatic cancer metastasis to liver?
Discussion
Radioembolization for pancreatic cancer metastasis to liver?
Pancreatic Cancer | Last Active: Jun 19, 2023 | Replies (17)Comment receiving replies
Hello Colleen, thank you so much for responding and for your info, I will definitely make use of the resources you have provided. It's one week after my dad's first dose of folfirinox, and he still is barely eating. He takes his anti nausea meds and says they help but not enough to make him think he can keep food down. He is very sullen. I've never seen him like this before and I feel very sorry for him. I'm afraid he'll give up and die sooner than we expect. I'm sad and afraid and overwhelmed. It feels like I'm living in a nightmare and like my world will never be OK again. My mom contacted MD Anderson in Houston but they won't see him until time for re staging, which is in 3 months. For now I will try to get him to eat because I think they'll stop his chemo if his weight continues to drop precipitously.
Thank you again for your response and for asking how me and my dad are doing.
Replies to "Hello Colleen, thank you so much for responding and for your info, I will definitely make..."
Hi, I'm 64 years old, Stage IV PCan with metastatis to liver. Cancer diagnosed 8.3.22. Started Folfirinox 9.7.22. I've done 5 rounds. Learned of metastatis to liver last month after full work-up at Mayo. I started this journey without any extra weight to lose so I have been very focused on trying to limit my weight loss.
In my experience: 1. I take anti nausea meds as prescribed whether or not I feel nauseated. I take Ondansetron when I get up in the morning and then another 8 hours later. I don't wait until I feel nauseated. 2. Walking out of doors helps me with nausea and sometime appetite- even if I can only go for 20-30 minutes. I get out almost every day here in Alaska (when I'm doing "take-home" chemo. I just stuff all the tubes etc..under my down coat). 3. About once a month, the Ondansetron hasn't been enough, if pot is legal in your state, consider getting an edible or some buds that are designed to reduce nausea and increase appetite . A friend gifted me buds that are only 30% THC. Nausea was reduced without getting stoned. 4. If you can, see a Registered Dietician with experience in working with cancer patients who are on chemo. The Pancreatic Cancer Network can tell you who is in your area. I got some good ideas about how to increase calories overall and also protein. 5. For me, the recovery from each Chemo session has been different. I felt worse after the first one than after number five. Give my best to your dad.
Connect
Diagnosed Sept. 2021(Stage I/2). Had Whipple March 23, doing Chemo now. Lost 70 pounds but found way to gain weight! Don’t like to chew, like cold things. Really like Costco pumpkin pie and Costco chocolate covered vanilla ice cream popsicle!