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Adenocarcinoma of the endometrium: Pre-op prep & Diagnosis
I was diagnosed on Nov 14, about a month after I had one episode of dark vaginal spotting. My gynecologist ordered a trans Vagina ultrasound which showed my endometrium was 10,3 mm and should be less than 4. Also a complex ovarian cyst and large uterine polyp. He drew a C125 and we scheduled an endometrial biopsy. C125 was slightly elevated so he immediately referred me to the gyneoncologist and did the biopsy. I saw the oncologist 6 days later and the biopsy still wasn’t back. He was not happy and apologized saying I can’t tell you what to do til I get the biopsy. He gave me a from to scenario. I asked about the ovarian cyst which he said not to worry about but drew an He4 ovarian marker which was normal. He called my OB and said someone call that lab and tell them I want that report today. About an hour after I got home my gynecologist called and said he had a verbal which indicated endometrial adenocarcinoma , well differentiated which he told me was positive. He said he was calling the oncologist who immediately called me. I am scheduled for a devinchi robotic hysterectomy, removal of tubes, ovaries, cervix and sentinel node biopsy. Had to wait 15 days to get in the schedule. I am a nurse, retired in September, and I don’t know if that is helpful or a hindrance because I know so much. I also read too much. My emotions go from near panic to knowing as much as I can. My grandmother and brother died from colon cancer. I’ve never been pregnant, menopause didn’t start til age 55 and I’m overweight. All risk factors. My father died of lung cancer. I have a daughter which I adopted as a single parent. Surgery is 3 days from today. My daughter is driving home right now. She lives 750 miles away. Telling her was the hardest thing. It’s just the two of us. Fortunately I have many friends and a strong faith with a wonderful church family. I begin a pre surgery protocol tomorrow. Two days of a high carb diet. The morning of surgery 32ounces of Gatorade 4-6 hours before surgery. 3 hours before 8 more ounces with 1000 mg of Tylenol and 800 mg ibuprofen. This preop preparation I was not familiar with. Still have my times of high anxiety but am just needing to get the surgery over and have a final path report. So happy to have found this group
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@jlb333 Thank you. I will say a healing prayer for you.
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1 ReactionI will be praying for you. How did it go today with all the pre-op stuff? Who is your doctor? You are in the best place in the world to get this surgery. Remember that.
Prayers for you today Jlb333@jlb333. My surgery will be exactly a week after yours. We are on this cancer adventure together. I call them my little cancer boogers. God give you strength for what lies ahead and remember with Him it is a win win scenario.
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3 Reactions@cynthiaslife Your surgery is scheduled for December 9 - a week from Friday? Is that correct?
I noticed that you just joined Mayo Clinic Connect. I'd like to welcome you and thank you for providing the needed support to @jlb333 who may be in surgery or hopefully recovery as I wrote this.
May I ask if you were diagnosed with endometrial cancer too like @jlb222 and many of us here?
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2 ReactionsThanks for reaching out. Yes I was diagnosed with endometrial adenocarcinoma. That is the same as endometrial cancer, correct?
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1 Reaction@jlb333 @cynthiaslife thinking of you. Looking forward to hear how all went.
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1 Reaction@cynthiaslife There are different kinds of endometrial cancer and endometrioid adenocarcinoma is one kind. That was my diagnosis also and I subsequently learned it is the most common of all the endometrial cancers. Of course no one of us who has been diagnosed with this thinks of it as "common".
Here is something to read about endometrial cancer.
What is Endometrial Cancer?
-- https://www.cancer.org/cancer/endometrial-cancer/about/what-is-endometrial-cancer.html
Would you be willing to share your surgical plan? Will you have a laporascopic
hysterectomy? That's what I had - a robotic laporascopic hysterectomy with oophorectomy and salpingectomy (removal of both ovaries and fallopian tubes) and cervix. It was difficult to believe at the time but it was same-day surgery. In very early in the morning and out by 5 pm once I was comfortable walking on my own.
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3 ReactionsI am suppose to have the robotic laproscopic hysterectomy but they said something about removing my uterus vaginally. Is that what you had? How was your recovery?
@cynthiaslife Yes, that's what I had. The uterus and other organs were removed through the vagina. It was amazing to me. I left the hospital with small bandages on the incision sites. I was fatigued for several days and I waited about 7 days before I began driving my car again. I didn't have any pain after I got home. Just tired. Although it looked from the outside like minor surgery I was advised that the healing I could not see was significant. By the time I returned for the follow-up six weeks later my energy was back.
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1 ReactionThanks for sharing all of this. It is calming me down. Sounds like the recovery went smoothly for you and you had little pain. I hope that is how it goes for me too. Did they say you had grade 1? That is what they told me. I am not sure if this is the same as stage 1. Do you know? Did they tell you what stage it was in?
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