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@artscaping

Good evening. You are absolutely right, PN or SFN (small fiber neuropathy) is a progressive condition. Since my diagnosis 9 years ago, my feet have gone from being consistently sturdy and comfortable to being one of my "quality of life issues".

In order to keep my driver's license I have two MFR (myofascial release) sessions every week and use a cannabis balm at night. There are solution possibilities available now and you will undoubtedly see more developments in the future.

What type of clinician would I choose again......a neurologist with a passion for discovering solutions. I have had very good care from the two I have seen.

You are gathering information now that will help you on this journey. That's a good thing.
And that is what makes Connect such a great resource. More questions?

Chris

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Replies to "Good evening. You are absolutely right, PN or SFN (small fiber neuropathy) is a progressive condition...."

Hi Chris,
I find myself giving up on looking for ways to help myself. The good news is that I don't have a lot of pain, the bad is with my feet, legs and arms so numb, my quality of life is a huge issue. I'm almost 70, and would like to somehow keep a somewhat normal lifestyle. Where do you find "a neurologist with a passion for discovering solutions"? All I've received is Gabapentin and when I asked what is being done, the answer (in 2020) was not much because of COVID. I was also told that most people should look at nephropathy as a "mild inconvenience". No not really, it's changed my whole active life. He's a very nice man, but I haven't gone back. I look here and there are so many different treatments, and opinions that I feel overwhelmed. I've become too tired to even look for answers anymore. Again ideas clinics or neurologists or trials would be greatly appreciated.

Christine (Chris)