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Small fiber neuropathy /autonomic neuropathy doctor in Missouri
Neuropathy | Last Active: Jan 13, 2025 | Replies (10)Comment receiving replies
I can understand being discouraged, especially when there really is no cure for neuropathy, only treatments for the symptoms. When I was diagnosed with idiopathic small fiber peripheral neuropathy after it had progressed for 20+ years and I finally decided I needed to know what the diagnosis is, my Mayo neurologist told me there is nothing that will help with the numbness and tingling which are the only symptoms I had. He just said to let them know if it gets worse and sent me on my way. That's when I started searching and found Connect. I started doing my own research until I found something that helps me. If you like to do your own research, Google Scholar (https://scholar.google.com/) finds a lot of the latest medical research which I found helpful.
I also found the following two sites useful, in case you haven't seen them:
-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
Replies to "I can understand being discouraged, especially when there really is no cure for neuropathy, only treatments..."
Did your numbness get better? What helped?
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John--thank you so much for the google scholar link! When I started seeing a local physiatrist 16 months ago, after a vertebral artery dissection and stroke, he wanted to do an EMG to try and explain my symptoms. When I asked him if the results would direct him to a direction for my treatment different from gabapentin and anti-depressants, he said they would not. I decided not to bother with EMG. I have now seen a neurologist at UCSF (I live far away in Montana) who has scheduled an EMG on me there on 12.22, because he said it would give a definitive diagnosis of neuropathy...which he does not think I have according to clinical presentation. My new physiatrist here tells me that is cannot definitively rule out neuropathy, and even if it could, treatment options don't change. So, I am wondering why I am getting this??!! Any thoughts??? Thanks.