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Lichen Sclerosus: Any other women dealing with this disease?
Autoimmune Diseases | Last Active: 4 days ago | Replies (323)Comment receiving replies
@willows, will you please share the name of the steroid ointment and oral medication? I am always looking for anything I can take to my gynecologist for her approval. Nothing has really helped me for very long. I am so sorry your lichen sclerosis was not diagnosed earlier. It took going through three gynecologists until I found my present one who at least knows about LS. We have tried so many things to try to help, but right now as I type this I am in burning pain. I have lost hope for a cure because I was told there is no cure. Ah well, at least I am alive.
With all good wishes, @joybringer.
Replies to "@willows, will you please share the name of the steroid ointment and oral medication? I am..."
Clobetasol is the ointment that is recommended. If your doctor didn’t prescribe it, you might want to find a doctor who is more aware of this condition. I highly recommend the Lichen Sclerosus Support Network. They have a lot of information about treatments, recommendations, what this disease is and how it affects you. I moved recently and went to a gynecologist who hadn’t a clue. The exam was painful because she was so quick with the speculum as if she was unaware of what damage LS can do. Through LSSN, I found another doctor who specializes in LS. It has made all the difference.
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I use Clobetasol (sparingly) which is a Steroid. It was prescribed by my gynaecologist. I am now on a maintenance level of once a week. I didn’t take it as prescribed (communication issue) and wound up with a pre-cancerous condition called VIN 3 (rare). I had extensive laser treatment… I now will remember my Clobetasol. There are other groups as well where you can find some good information… Sharing is Caring and LS Support Network. You will then have a good support group.