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Lichen Sclerosus: Any other women dealing with this disease?
Autoimmune Diseases | Last Active: Nov 12 9:01am | Replies (323)Comment receiving replies
Agree that this condition needs more publicity especially among the medical,community. I was undiagnosed for years and as a result suffered permanent nerve damage and tissue loss. In my case no ointment steroid, diet, or other treatment will bring back the lost tissue or the painful nerve damage.
I have a regime where a very limited use of a steroid ointment will prevent flare ups, and oral medication will control the nerve pain. I am not a diabetic. Hope you find your best solutions.
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@willows, will you please share the name of the steroid ointment and oral medication? I am always looking for anything I can take to my gynecologist for her approval. Nothing has really helped me for very long. I am so sorry your lichen sclerosis was not diagnosed earlier. It took going through three gynecologists until I found my present one who at least knows about LS. We have tried so many things to try to help, but right now as I type this I am in burning pain. I have lost hope for a cure because I was told there is no cure. Ah well, at least I am alive.
With all good wishes, @joybringer.