I had exactly the exactly the same but stage 2. Doctor told me there was a 1% chance of recurrence. Is there such a thing when you are in the 1% group? Might as well be 100%.
I had robotic surgery same 2009 recurrence in 2017.
Never thought for a minute it would come back. I went to Sacramento, Stanford and the Mayo Clinic and decided to get my treatment at Stanford being the best treatment and location for me.
In March It will be 5 years. I had the original radiation at Stanford and was told normally if the cancer would recur it would be within 2 years. Things I have learned make sure you get a good gynecologist oncologist one who will listen. I had my original surgery in Texas, 5 years later we moved to California. Needing a new gyno oncologist I did my research, I went to three oncologist after the initial surgery none of these drs used a speculum, I just kept changing drs until one did and she even said that she doesn’t normally use a speculum but would, she was the fourth dr who found it. Had I not been so persistent, who knows where I would be today.
I am still using my dilator which I hope you are? I am now only using it 2 days a week which is great after everyday. I did get a couple of UTI’s at the beginning and one doctor said to try getting a shower before I used it that has helped no uti since. I also purchased different dilators the ones issues at Stanford were basic and very hard.I also used several gels before I found a good one.
Hope this helps. Just know you are not alone, through different groups I have found that a lot of women have had recurrence so maybe someone needs to adjust the stats for recurrence form 1%. Good luck. ,message me anytime if you have questions?