@kamama94 I know that keeping track of things is quite time-consuming for anyone. The first thing each morning I do my vitals [time-of-day, weight, BP, pulse, temp] Later in the day I log those same values into my dialysis log by hand, and include how long my fluids are dwelled, plus any additions in the notes [added heparin, fibrin present, etc.] Except for dwell time, those things are logged in to the iPad issued by my dialysis clinic as they keep track of me each day. While calculations regarding liquids, sodium, potassium, etc. are not written down, I do watch them everyday.
I have two sets of bloodwork down each month, one from my oncology center, and another from the PD clinic. Different focuses, different labs. Always interesting to watch the differences! And you've reminded me that my potassium chloride prescription needs renewal this week.
Ginger
@gingerw, keeping track is a full-time job in and of itself! Neph asked me the other day if I still tracked B/P, P, O2 at home and I confessed I feel so lousy so much of the time and am so tired I stopped checking those things. Food intake calculations, blood sugars, insulin, other meds take up most of my day. Fortunately, Neph says kidney stable for now and only need to come in every 4 months unless I decide otherwise and PCP is every 3 plus our phone and patient portal "visits" for anything that comes up in between. I no longer feel like totally giving up and staying in bed but each day is a huge challenge and I know you face equal challenges. Let's both keep "hangin' in there!" Peace and blessings!