← Return to Rare Cancer: Gynecologic Extramammary Paget's Disease

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@moffitt

My EMPD has now spread to my liver and my spine(L-4). Radiation of the L-4 starts tomorrow. 10 consecutive treatments. Too many tumors on the liver to radiate or remove surgically. I was told that my EMPD is “a fast moving train.” We need to stop
or slow down the spread. I am still getting immunotherapy ever 3 weeks and have refused chemo. I do not want to spend whatever time I have left as sick as chemo has made me.

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Replies to "My EMPD has now spread to my liver and my spine(L-4). Radiation of the L-4 starts..."

I'm so sorry 💔 I have prepared for my death, saw "the light" ow fo

I can’t tell you how sorry I am to read this. Your whole journey with EMPD just takes my breath away, and now to read that it’s a fast moving train. I hope the radiation treatments on your spine help. Please know I’m rooting for you.