← Return to NETs: Anyone has Liver debulking for liver metastasis?

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@hopeful33250

Hello @caitrina and welcome to Mayo Connect. I am so glad that you found this forum. We have many members who have experience with NETs and can share their stories with you.

I would like to introduce you to Connect member, @kathryncd, who has also had NETs in the ileum. I hope that she will join you in discussing her journey with NETs.

You mentioned that you will be having treatment with Lutathera, also known as PRRT. Here is some information from Mayo Clinic's website about this nuclear medicine treatment that targets NETs.

--Nuclear Medicine Therapy
https://www.mayoclinic.org/departments-centers/nuclear-medicine-therapy/sections/about-nuclear-medicine-therapy/gnc-20489020
Another Connect member, @kjstein, has had PRRT and I hope that she will join to share her experience. Here is a link to her post about PRRT,
https://connect.mayoclinic.org/comment/713543/
What type of symptoms are your experiencing now, @caitrina, and when do you expect to start PRRT treatment?

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Replies to "Hello @caitrina and welcome to Mayo Connect. I am so glad that you found this forum...."

Thank you for responding and the friendly welcome! Btw, I meant NG tube in my intro. My treatment begins this Wednesday. Needless to say I’m very nervous. My symptoms at this time include some pain on my left side under or around my rib area. Not sure this is caused by the cancer, but it really isn’t severe. It’s enough to let me know it exists. I am also back to flushing which I absolutely hate! However I think I’ve somewhat learned how to handle it and just move right along with my day. Loose stools, urgent ones at that. I think my biggest complaint is being a bit short tempered and insecure about anything and everything, I’ve had quite a bit of hair loss, thankfully I had so much hair it doesn’t show unless people have known me. It was about to my waist and very thick and I began cutting it until it reached my shoulders. I can feel the thin-ness of it now. So at this point this is what I’m going through. Simple stuff, right? Also since being taken off afinitor I am now able to eat again and hoping this new treatment will not make my food taste like metal.