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Cervical myelopathy mistaken for neuropathy

Neuropathy | Last Active: Apr 30, 2023 | Replies (21)

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@dbeshears1

Sometimes I wish I could start medical treatment all over again under a new identity (for my Idiopathic PN). It would be nice to have a completely fresh start with a fresh perspective, with no chance of bias or reliance on assumptions of previous providers. Doctors are so rushed anymore, it might be easier to just do their own things versus reading through many years of previous, multiple provider notes. I have caught things they have missed or read improperly from past notes, or were just unfortunate mistakes in the dictations in some reports. Heck, I've caught errors and omissions my current doctors have made from visit to visit with them. I know insurance companies don't want to and won't pay for unnecessary duplication, but sometimes I'd like to tell a doctor "Don't tell me what past doctors think, I'd like to hear your own analysis". I have a GI medicine I've been asking to consider stopping, from a now deceased doctor from a state I lived in 15 years ago. Nobody today can confirm exactly why I'm on it and if I need it, and I'm embarrassed to say I have no clue either. But my doctors don't want to change anything because they don't know and there's no need to chance an issue by stopping the medicine! Hence, my wish sometimes to start over with a new medical identity....

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Replies to "Sometimes I wish I could start medical treatment all over again under a new identity (for..."

When I changed primary physicians a few years ago I was looking forward to discussing and perhaps eliminating some of them. My heart sank when he said they were all necessary. He didn’t want to offend someone he probably knows. I am pretty upset with a Dr. at a pain clinic who tentatively diagnosed me with CAUDA EQUINA . The spine clinic nurse said CE was never mentioned at my Pain Clinic appointment. Fortunately the pain clinic doc spelled out on the back of one of her cards. Are they both lying? There is a cover up going on here. What is the spine clinic so afraid of?
I don’t know if I have enough info to formally protest. Enough said for the time. Don

Good evening dbeshears1, I just read your reply post and I will have to admit that I was a bit concerned. In trying to interpret your contribution Debbie, I gather that you feel there just has to be a reason for your neuropathy other than Idiopathic. I just don't know what that might be. It can't be easy like diabetes or chemo. It is not understandable like Trauma from injuries or surgeries or heaven forbid some combination of the two.

That's what led to my SFN (small fiber neuropathy). And so I spend way too much time exploring my past accidents and the surgeries that put me back together again. Was it because of the 3 days I spent face down in a sling over the hospital bed in Dover trying to reduce the size of the concussion on the back of my head? Was it that first rear-end collision on the off-ramp in Pittsburg? I lost my son that day also. And there are several other accidents beginning at the age of 13 including that pretty horrendous fall down the mountain.

Our bodies are amazing and the result of complex materials used to create a body that may function for 100 years. Wear and tear are way too possible. I know you have read that 100% of human beings who experience aging are likely to encounter neuropathy of some kind before they die.

As other aging medical issues pop up more frequently these days, I am more likely to lump them all together. I just spent six days with my 3 and 5-year-old grandchildren. I see them twice a year. So we do puzzles, play iPad games and I read them our favorite pop-up books. This Thanksgiving I found everything just a bit more difficult. 1. Needed my new reading glasses. 2. Had to prop my neuropathic feet up on warm pillows. 3. Could only read a couple of their pop-up books before having to take a break. And, I did without my medical cannabis to avoid any mysterious behavior.

So.....would it be possible for you to tell me the essence of your concern?

May you be free, safe, and protected from inner and outer harm.
Chris