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DiscussionRaynaud's Syndrome: Anyone want to talk about Raynaud’s?
Autoimmune Diseases | Last Active: Dec 25, 2023 | Replies (225)Comment receiving replies
Replies to "My 17 year old son has recently developed Raynaud's in his right foot. It is brought..."
@adamsthorn I think all the suggestions from @andigreeneyes are just great! Tell your son to be strong keep fighting!
I have had Raynaud Syndrome my entire life since I started ice skating when my toes were white. I also was very athletic and it turned out that I had Ehlers Danlos where Raynaud is a co-morbid condition, as is POTS which I also have. I agree about the extensive work ups for sure. I have a LOT of allergies and became so utterly run down with all my sports and activities through life, I now have Mast Cell Activation…..again an often co-morbid condition with EDS. With EDSh think, double-jointed with loose joints which is due to a collagen deficiency , again, contributes to lack of sufficient blood flow. In my forties I had mostly deformed toes long after I finished skating, because the white toes eventually lost so much blood flow they became hammered. …..contracted…..this happened to my sisters fingers. Same reasons. I ended up having pins in every toe of both feet. Also severe carpel tunnel, and eventually shoveling snow my thumbs dislocated from my hand because of lack of blood flow. Both thumbs had to be fused w titanium long, pins. If I had ever known all of this as a young person I would have altered just about everything in my life to avoid the many surgeries that became necessary. I would certainly make sure that you are not dealing with EDS. I see a LOT of it in excellent athletes and in dance and gymnastics……hyper mobile!……what do I take for Raynaud? I use Salon Pas, …..the pain patches. They soak in through the pores and feel wonderful…..each patch gives me better circulation and pain relief, and I plaster them all over any joint that aches!……the inflammation is reduced through the pores and not the kidney. Needless to say, I ended up moving to Florida where this disorder ceases to be painful!……
For anyone withRaynauds or any nerve injury problem, I’d like to suggest wearing gloves or socks made of neoprene, like scuba diving equipment. You may be able to buy sheets of neoprene in a diving shop and make what you need using the glue they have, instead of ‘’sewing’’. The thicker the neoprene the warmer they are. Mittens, of course, are warmer than gloves in any fabric, but neoprene has always provided the best protection.
Buy disposable toe warmers. There are also full-sole feet warmers. You can buy these on Amazon (no, I don't own stock!).