← Return to Lobular Breast Cancer: Let's share and support each other

Discussion

Lobular Breast Cancer: Let's share and support each other

Breast Cancer | Last Active: May 27 11:09am | Replies (370)

Comment receiving replies
@kwatson

I have recently been diagnosed with invasive lobular carcinoma in my right breast and it has also been found in the closest lymph node near my right breast, verified by biopsy of breast and biopsy of lymph node. I have heterogeneous dense breasts. I am considered "high risk" because with dense breast getting clear pictures with a mammogram and identifying anything unusual is very difficult. For the last 5 years, I have had the 3d mammogram or tomosynthesis vs. a regular mammogram. I was on top of it, annual testing and additional testing when requested if something looked different from the 3d mammogram from the year before. I did everything right or everything my breast care specialists suggested/requested of me.

This screening was not enough to find my lobular cancer diagnosis before it traveled to my lymph nodes. There is so much more to be concerned about once the cancer travels outside of the breast.

In my opinion...I believe if I had annual MRI's the cancer would have been found earlier and potentially not spread to the lymph nodes. PLEASE, PLEASE, PLEASE advocate for yourself when it comes to breast care. Go the extra mile to get the breast cancer screening you feel is right for you. FYI...Getting insurance to pay for the MRI can be an issue so make sure you have your DR's on board and that they are willing to help push your insurance to cover the cost.

YES, lobby for the MRI.

I hope my story helps you and many others to get the MRI.

Jump to this post


Replies to "I have recently been diagnosed with invasive lobular carcinoma in my right breast and it has..."

Sorry about your journey and I hope everything goes well for you. . I also should have been a better advocate for myself. Age 67 mammo every year, very dense breasts. In 2021 a 5.7 mm lobular cancer, Triple Negative was found. 6 rounds of chemo masectomy because of chance for recurrence with both those issues, then 3 weeks radiation left breast. Zomeda infusion every 6months and check ups every 6 months. MRI every other year now and diagnostic mammo. 2 years out so far so good. The worry is there but I just want to live life and hope for the best. Thinking of you.