Tymlos side effects I've encountered

Thank you, Chris @artscaping. However after checking into Alendronate, it lists one side effect as esophagus problems. I do have problems with my esophagus since I took Boniva several years ago. Still searching! I appreciate your reply.

I am so glad I found this support group and I thank you @windyshores for sharing your experience. I have been struggling for a month with my tymlos side effects and was ready to give it up when I found this site and started reading about lower dosages. Even my specialist didn’t know you could do this! (She’s happy to learn more). So 2 days ago I changed to .6 and I immediately stopped having the severe tinnitus and heart arrhythmia which were lasting all day! I still get a tension headache and tachycardia, but they last less than an hour and I can live with those. I’m starting to feel like my old self again! With kids and grandkids coming for Christmas, I’m very thankful!

I had arrhythmia also (afib) at a higher dose (and landed in ER). I would suggest, if you are still having headache and tachycardia that you go to 4 or even 2 clicks and work up. I have been at 7 clicks for a year. It took me awhile to get to 6! Good luck!

ps I have NO side effects at 7 clicks...after ramping up.

@txmom
It seems to me that most doctors recommend Reclast after Tymlos or Forteo. I will be ending my time on Tymlos in January and I think that's what I will get on, but I am nervous about it.

@artscaping Alendronate is basically Fosomax, right? I probably cannot take an oral medication due to having Barrett's Esophagus.

I have found Tymlos to be odd in that some side effects seem to be sporadic. I have temporarily stopped it for a few days and that has seemed to act like a reset. Since initially I didn't have any side effects when some occurred my first thought was not Tymlos but I'm pretty sure now that it is the culprit.
JK

JK @contentandwell
After checking on Alendronate, you are right. I also have a bad Esophagus so will not be able to take it. And I have a bad jaw bone, so will not be able to take Forteo. I am hoping that a balance of vitamins might help me, but my doctor is really wanting me to take Evenity. I understand it is bad on the jaw bone also. I had an injury from dental work several years ago that has left me with jaw bone pain constantly.

Thank you for your reply. txmom

Forteo and Tymlos would not affect your jaw bone @txmom .

Tymlos side effects seem to be sporadic as well except for pulsating feeling in the left ear. Also, when I start a new pen for 2-3 days I feel higher heart rate soon after the injection. I have been taking Tymlos for three months. When I don't feel 100% I skip injection.

@txmom I was not aware that Forteo and Tymlos can affect your jawbone, I thought that was just the bisphosphonates. You might want to check on that. I really am not familiar with Evenity. I remember there was something about it that I thought made it inappropriate for me.
JK

I had a broken jaw in 1981. I had ended up with TMJ and had to wear braces for 2.5 years as an adult to straighten my face. No problem ever since. I just took my fourth shot of Evenity and have not had any side effects. In my case, I have had a total hip replacement 12 years ago. I just had a crown break off for no reason. I have to have what is below the gum taken out soon as infection from the mouth can travel to the hip. After discussing with the doctor who had prescribed my Evenity, and the oral surgeon, I feel pretty good about it. Last year, I slipped in my bathroom and have a Burst Compression Lumbar I Fracture along with a couple of other things. I could not have surgery to fix my issues due to my bone strength. I also can't stand for over five minutes at a time. It's going on 2 years now and I can't wait until I can get surgery. I am so glad that I am on Evenity and will deal with whatever if anything happens. My oral surgeon will be monitoring my situation and can fix it is something goes wrong. The risk is worth it for me. I will endure whatever happens if it happens.

@contentand well, Forteo and Tymlos do not pose the same risks of jawbone necrosis. They build new bone. Biphosphonates, Prolia and to a lesser extent Evenity are anti-resorptives, which have the potential to affect jawbone as well as femur over time.

In fact, studies have shown that Forteo and Tymlos may actually treat problems in the jawbone or femur that are caused by the other drugs.
https://www.arthritis.org/health-wellness/detail?content=treatment
Forteo May Spur New Bone Growth in the Jaw. Studies show teriparatide, brand name Forteo, may help regrow jawbone loss due to periodontal disease or osteonecrosis. Two studies suggest that the drug teriparatide, or Forteo, may help people who have lost bone in their jaws because of periodontal disease or osteonecrosis.

Just google "Forteo necrosis of jaw" and lots of studies come up. I will leave it to you to see the studies but here are two articles:
https://www.aboutlawsuits.com/forteo-treat-fosamax-jaw-osteonecrosis-13515/
Two new articles published in the New England Journal of Medicine suggest that Forteo (teriparatide) may combat osteonecrosis of the jaw (ONJ) and other fractures caused by bisphosphonate medications, such as Fosamax.