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Neuroendocrine Tumors (NETs) | Last Active: Nov 29, 2024 | Replies (429)Comment receiving replies
Absolutely, she is on a two week cycle on and two weeks off of chemo. For all 14 days of the cycle she takes Capecitabine 500mg tablets, and from day 10 - 14 of each cycle she takes in addition to the Capecitabine, Temozolomide 100mg tablets. She has completed six straight cycles since April diagnosis, with a probable continuance until there is no more improvement, then possible surgery on the mass around the pancreas once it is the smallest the chemo can get it. Our follow-up with Froedert is November 29th, to make final decision. As I mentioned before, there are certainly still good and bad days still, but she has been able to continue to work part-time through all cycles, as a small side benefit, with no loss of hair.
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After 7 cycles of the above chemo (pills) treatment, our Cancer Care Team at Froedert Hospital in Milwaukee, has decided that I have progressed enough that surgery is back on the table to go in and knock the NET down even further. Their plan is to remove the remaining mass on the pancreas, remove the gall bladder as it has become enflamed from the repeated Chemo cycles, and remove the remaining tumors on the Liver by either surgery or insert radioactive material in the cancer tumors to kill them. Hopefully, it will be completed before the end of the year, my question to any, that have had any similar surgery, as to what to expect, in regards to recovery and lifestyle after this surgery. After this surgery, our cancer care team believes I will only have to take the monthly shot as a maintence function to keep the NET at bay hopefully for a very long time.