Hi @sweet 63,
My wife Kim was diagnosed with NET in April of this year. We were devasted at first, after all the tests, it was determined that she had NET's with numereous spots all over the liver and a mass attached to the tail of the pancreas. The best news was that it was NET's, and not the more often diagnosed pancreatic cancer. NET's has a much better prognosis over 5 years. Our Cancer Care Team from Froedert Hospital in Milwaukee, had her start chemotherapy by pill, and after 3 cycles, there was 50% reduction in the tumors on both liver and pancreas. Now after 3 more cycles, there has been more reduction around 20%, with the plan to continue the chemotherapy until there is no more reduction, as she has been able to tolerate the pill version of chemothearapy well enough to continue part-time work through it all. At that point the plan will be to remove the mass on the pancreas, and reevaluate next steps. The cancer care team has repeatingly mentioned that they believe they can kick this down to a maintenance issue decades down the trail, answering our prayers for a promising diagnosis long term. NET's as we read is in only about 2% of the cases, and consider this a true blessing to allow her a fair fight to at least knock this down to allow for her to live a full life. Stay strong, there will still be good and bad days, but you will make it.