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HER2 positive research trial TPIV100

Breast Cancer | Last Active: Aug 16 11:22am | Replies (6)

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@zeerj

I hope you don’t mind me asking, it sounds you had her2+, if so, do you mind sharing whether you had mastectomy and reconstruction? Also can you share the treatment you had and the stage at diagnosis? I’m always looking for positive stories. 🙂

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Replies to "I hope you don’t mind me asking, it sounds you had her2+, if so, do you..."

I am her2 positive, I was diagnosed in my 30s. I had a surgical biopsy, then a partial mastectomy, about a third of my breast. Then back again for axillary node dissection. I was stage 2b, with grade 3 cancer. In one year I had 6 rounds of TAC chemo, 6 weeks of radiation, and then an oopherectomy. I took 5 years of tamoxifen, and almost 10 years of arimidex. I had to go back and take herceptin because it had not been approved for frontline use yet, only relapsed.
It has been grueling at times but usually in short bursts, then I get to whine about it for years. 😂😂
I was diagnosed 18 years ago, and given the original news on the Wednesday evening before Thanksgiving.
I love how far they have come with treatments for her2, I love that everyone doesn’t have to take all the most aggressive treatments.
The one regret for me is that I didn’t push harder for mastectomy. I really wanted a bi lateral without reconstruction, when the doctor said no they don’t do that anymore, I accepted that. I made the best decision as I could at the time, and I am truly grateful for the life I have had for these years.
Are you being treated at a large cancer center? Are you still considering a mastectomy?