Prostate Cancer- getting help-questions answered

Posted by cony2 @cony2, Aug 16, 2022

Approximately 20 years ago a Urologist after listening to my symptoms and without doing procto or anything said I had prostate cancer and would schedule me for surgery next week-- my response was lets talk and chose to go on the blue pill and wait.
Since then after biannual tests and blood count going from 4 to 7 now 14, suggests getting a bone marrow test to see if any cancer cells show up.
My question is: should I consult a cancer specialist now???

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

@dirtdancer

First, I want to say something my doctor told me. And several told me the same thing, bone cancer isn’t treated until you have pain they just let it go and that is the common practice. So getting Medicare or insurance to pay the bill for treatment or a process to curate is difficult, I do not understand why they don’t care about the growth of the cancer only the amount of pain. I personally have stage four castration resistant invasive aggressive prostate cancer that has spread to my bones and it is in multiple spots around my body which they won’t radiate so I know I’m headed for more trouble and less I can do some thing to stop the cancer cell growth I do have two separate spots on my spine with cancer. My L3 and L4 and then my upper neck vertebrae. I cannot get them to treat these areas because they don’t have pain yet. We have site insurance approval and it doesn’t come , between hospitalization and doctor charges and pharmaceutical charges it will be around $100,000 to treaties and that’s beyond my reserves so there’s that. This has fostered me to look for a cure. Your numbers are still relatively low and yet you have had some serious complications , your diet will definitely be different than mine but I would do some research and see a good naturopath or holistic practitioner. The number one feeding source of cancer is sugar, so eliminating sugar and most carbs which are transformed by your body into sugar is your first step, and your very best step .

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Sorry, I did talk to text above; and there are several errors. Once you have hit reply, you cannot go back and edit as individuals are biggest weapon against cancer spread is prayer and diet plus the addition of minerals and vitamins, which is a part of your diet. Get signed up on the medical portal that your doctors use, and there will be a lot of information there. Including the results of the bone, scan a strongly encourage you to try and get a PET scan as well. The pet scan is better than the bone scan. All of us on here are battling cancer; those of us that have won the battle are no longer coming here and commenting. So to defeat cancer is possible. You have to be your own doctor.

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@dirtdancer

First, I want to say something my doctor told me. And several told me the same thing, bone cancer isn’t treated until you have pain they just let it go and that is the common practice. So getting Medicare or insurance to pay the bill for treatment or a process to curate is difficult, I do not understand why they don’t care about the growth of the cancer only the amount of pain. I personally have stage four castration resistant invasive aggressive prostate cancer that has spread to my bones and it is in multiple spots around my body which they won’t radiate so I know I’m headed for more trouble and less I can do some thing to stop the cancer cell growth I do have two separate spots on my spine with cancer. My L3 and L4 and then my upper neck vertebrae. I cannot get them to treat these areas because they don’t have pain yet. We have site insurance approval and it doesn’t come , between hospitalization and doctor charges and pharmaceutical charges it will be around $100,000 to treaties and that’s beyond my reserves so there’s that. This has fostered me to look for a cure. Your numbers are still relatively low and yet you have had some serious complications , your diet will definitely be different than mine but I would do some research and see a good naturopath or holistic practitioner. The number one feeding source of cancer is sugar, so eliminating sugar and most carbs which are transformed by your body into sugar is your first step, and your very best step .

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Wow thanks I have little pain, only sleeping when I have not eliminated poop and my L4 pinches till elimination. My medical oncologist tells me sugar is a myth. I drink only chardonnay daily, so he says be happy in moderation.
As my psa has gone to 5.23 from 1.2 in 2 months, he has ordered a CT scan Dec 5th and a Nuclear PET bone scan Nov 29th. In Ontario Canada everything is 100% covered including my Zolodex and if needed Enzalutamide and any other. My wife works for Min of Health and has a 85% coverage plan for what might not be covered which so far has been zero.
I am 78, and a tad overweigh. My back tiers if I stand or walk too far. I get a wheelchair at airports, just back from Sandals Emerald Bay Bahamas Darn those no see em sand flies.
I DO WELCOME your suggestions and experiences. Keep them coming. I hear a new drug that inhibits growth CD105? is in trials. Doctors say I will never be cured, just controlled with multiple therapies. I want the cure

I ask St Rita saint of impossible to intercede to JESUS for assistance to give me many many years to help others in life. Can I see the cure?

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@dirtdancer

First, I want to say something my doctor told me. And several told me the same thing, bone cancer isn’t treated until you have pain they just let it go and that is the common practice. So getting Medicare or insurance to pay the bill for treatment or a process to curate is difficult, I do not understand why they don’t care about the growth of the cancer only the amount of pain. I personally have stage four castration resistant invasive aggressive prostate cancer that has spread to my bones and it is in multiple spots around my body which they won’t radiate so I know I’m headed for more trouble and less I can do some thing to stop the cancer cell growth I do have two separate spots on my spine with cancer. My L3 and L4 and then my upper neck vertebrae. I cannot get them to treat these areas because they don’t have pain yet. We have site insurance approval and it doesn’t come , between hospitalization and doctor charges and pharmaceutical charges it will be around $100,000 to treaties and that’s beyond my reserves so there’s that. This has fostered me to look for a cure. Your numbers are still relatively low and yet you have had some serious complications , your diet will definitely be different than mine but I would do some research and see a good naturopath or holistic practitioner. The number one feeding source of cancer is sugar, so eliminating sugar and most carbs which are transformed by your body into sugar is your first step, and your very best step .

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I also have stage 4 prostate cancer. A spot showed up on my hip a couple of years ago and I had SBRT radiation treatment right away. I am being treated at Mayo in Rochester.

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@jap57

I also have stage 4 prostate cancer. A spot showed up on my hip a couple of years ago and I had SBRT radiation treatment right away. I am being treated at Mayo in Rochester.

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They radiated in inch out of my L2 lumbar 2 years ago but even on Zolodex my PSA just rose now from 1.2 to 5.23

What is your treatment plan please 78 in Toronto across from Rochester

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@colleenyoung

Hi @dd2312, I'm sorry that I'm only seeing this now. I will ensure that the future meeting have the link included.

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Colleen, Is there a Rochester Mayo prostate cancer support group meeting on Monday 1/9/23 and if so, will there be a Zoom link posted. And when would that be available? Thanks.

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@dd2312

Colleen, Is there a Rochester Mayo prostate cancer support group meeting on Monday 1/9/23 and if so, will there be a Zoom link posted. And when would that be available? Thanks.

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Good question, @dd2312, I will check with Dr. Vetter and post the event details before Monday.

I’m tagging @budisnothome in case he knows more about this month’s support group meeting in the meantime.

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@colleenyoung

Good question, @dd2312, I will check with Dr. Vetter and post the event details before Monday.

I’m tagging @budisnothome in case he knows more about this month’s support group meeting in the meantime.

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The meeting this month is Wednesday Jan 11 at noon. Baldwin building conference room. I will find the zoom address and post that.

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@budisnothome

The meeting this month is Wednesday Jan 11 at noon. Baldwin building conference room. I will find the zoom address and post that.

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Dear Support Group Members,

The Prostate Cancer Support Group will meet at noon on Wednesday January 11 in Baldwin 1-507. Dr. Jarrett Richardson, Consultant and Professor of Psychiatry, will discuss “Depression in Prostate Cancer Patients.” I look forward to seeing you.

If you are unable to attend in person, you can tune in on Zoom at the following link:

Join Zoom Meeting
https://mc-meet.zoom.us/j/96678620106?pwd=RDFlMkFON2l2NWw1UVdxRGQ1YTF4dz09
Stay safe,

Dick

Richard J. Vetter

Professor Emeritus

Mayo Clinic

Rochester, MN 55905

(H) 507-281-3917

(C) 507-951-9109

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@budisnothome

Dear Support Group Members,

The Prostate Cancer Support Group will meet at noon on Wednesday January 11 in Baldwin 1-507. Dr. Jarrett Richardson, Consultant and Professor of Psychiatry, will discuss “Depression in Prostate Cancer Patients.” I look forward to seeing you.

If you are unable to attend in person, you can tune in on Zoom at the following link:

Join Zoom Meeting
https://mc-meet.zoom.us/j/96678620106?pwd=RDFlMkFON2l2NWw1UVdxRGQ1YTF4dz09
Stay safe,

Dick

Richard J. Vetter

Professor Emeritus

Mayo Clinic

Rochester, MN 55905

(H) 507-281-3917

(C) 507-951-9109

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Thanks, @budisnothome. I knew you'd get on this faster than I would! Much appreciated. I've added the details to the Events calendar too. It's an important topic with a great guest.

@dd2312, please note the date change. The meeting will be on Wed. Jan 11 this month. See more here: https://connect.mayoclinic.org/event/prostate-cancer-support-group-4/

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