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Hypereosinophilic syndrome (HES)

Blood Cancers & Disorders | Last Active: 2 days ago | Replies (59)

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@mraymond

Hello, my grandson recently was diagnosed with idiopathic hypereosinophilic syndrome and its all new to us as well, but they started him on a shot called nucala to bring his eosinophils down because he can't take any form of steroids due to him also possibly having cancer. They said his is also pre leukemia condition and the steroids will mask any cancer if it is growing in his body. I don't understand this and I have searched everywhere to help get answers. Your dr should listen to you about the hair dye because the immunologist told us that certain allergies can rise your eosinophil count.

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Replies to "Hello, my grandson recently was diagnosed with idiopathic hypereosinophilic syndrome and its all new to us..."

Did they test him for cancer? They did a bone marrow aspiration for me to look for a few cancers all came back negative. My immunologist also is suggesting nucala for me rather than life term prednisone. Is nucala working for your grandson? What makes them think there is a cancer possibly?