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Increasingly Difficult to Accept Peripheral Neuropathy

Neuropathy | Last Active: Aug 27, 2023 | Replies (163)

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@barrye

I have had peripheral neuropathy for close to five years. The worst part is that when you think you are improving, it turns out to be short lived, and PN hits you with some other kind of pain or symptom. My wife is always encouraging me to try this medication or try something like acupuncture. The medicines do nothing for me, and treatments like acupuncture do no better than beating myself over the head. What I do now is is anything that I can do. I had to quit softball because I couldn't run. Golf as it was too tiring to walk through the rough; pickleball and table tennis as I was afraid that I would go after a ball too abruptly and land on the concrete or floor. I have not given up though as now I play billiards. I get some exercise by walking around the table, and I can sit while waiting for my turn. For many years I have written a weekly column for friends and a digital newspaper. I can still do this. The point is that I try to adapt to what I can do. Barry

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Replies to "I have had peripheral neuropathy for close to five years. The worst part is that when..."

Hello @barrye, Welcome to Connect. Great advice, I also believe in taking it one day at a time and living the best I can. I shared my neuropathy journey in another discussion here - Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/comment/310341/.

I fortunate in that my only symptoms from my small fiber peripheral neuropathy is some numbness and tingling in the legs and feet but I do take supplements that I think have slowed or possibly stopped the progression that my neurologist told me to expect. The Foundation for Peripheral Neuropathy has a list of treatments that others have found helpful here - https://www.foundationforpn.org/treatments/.

You mentioned acupuncture didn't help. Have you done any research into other types of treatments?