Welcome @grammabitz. You are understandably nervous. I'm tagging fellow members like @joannem @gaylejean @carcinoid23462 @char1962 @sophiarose @laurell410 @gulzar who have experience with Sandostatin injection (octreotide) treatment for NETs.

Grammabitz, I want to be sure that I'm understanding your timeline and diagnosis correctly. In 2015 you were diagnosed with the neuroendocrine tumor in your intestines for which you had surgery. At that time some of the lymph nodes removed showed cancer as well. For that reason you were given Sandostatin every 28 days to help reduce the spread of cancer.

Fast forward to 2021, when you had further surgery to remove a tumor from your neck just above the clavicle. Was this tumor diagnosed to also be a neuroendocrine tumor? Is it considered metastatsis (spread) from the original cancer?

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