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Any experience with hypereosinophilic syndrome (HES)?
About Kids & Teens | Last Active: Mar 18 3:29pm | Replies (64)Comment receiving replies
Hi everyone. I’m new in this site. I was recently diagnosed with HES and am
Wondering if anyone has a similar diagnosis and could share their story. It is so new to me and I’m unsure of it is accurate. I’m trying to hard to figure this out.
Replies to "Hi everyone. I’m new in this site. I was recently diagnosed with HES and am Wondering..."
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Welcome @donnahes,
I moved your question about HES to this existing discussion:
- Hypereosinophilic syndrome https://connect.mayoclinic.org/discussion/hypereosinophilic-syndrome/
I did this so you can read previous posts and connect easily with members like @vkartsona @zenk @aer @jkupratis @mraymond, who have experience with hypereosinophilic syndrome (HES).
Donna, you mention that you're not completely confident that HES is an accurate diagnosis for you. Would you mind sharing what symptoms you experience? What testing led to the diagnosis of HES?