← Return to CRPS - anyone suffering with complex regional pain syndrome

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@rwinney

Good morning @gmacalypso. I'm Rachel, it's nice to meet you. I empathize with your pain and symptoms from central nerve pain and like that you've said you are trying to stay positive. That is a huge piece!

It's no wonder you're feeling worn down. Nerve changes that affect your whole body are overwhelming, I share in your journey, although different causes, same outcome. Central Sensitization Syndrome is what shadows my life now. My noticeable changes began at 43, slowly but surely. Small Fiber Neuropathy entered at 47 as well as a plethora of sensory and CNS dysfunctions. Just letting you know that you are not alone. I'm 52, I'm right there with you and understand and experience (or have experienced) the symptoms you describe.

Sometimes switching nerves medications helps. I receive benefit from Pregabalin (Lyrica) which took time to acclimate to regarding side effects and find a dose that was appropriate. 1 week down for you, that's a start, but give it time. Patience of waiting was not always my strong suit. Some folks do receive help from Tramadol or Low Dose Naltrexone. Agreed, the cold is not our friend, is it? I live in upstate NY.

Each person is on their own journey. It can be quite a path of experimenting and learning how to live with change. My advice is to stay as active as possible and remember that your central nervous system may like to play tricks on you, but don't let it win!

How are your emotional changes and needs being met? Living with chronic symptoms affects our emotions and behaviors. How have you been handling such changes? Do you have a good support system in friends or family?

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Replies to "Good morning @gmacalypso. I'm Rachel, it's nice to meet you. I empathize with your pain and..."

Thank you, Rachel, for your words of empathy and support. I have to say, the news isn't the best, but I got the same prognosis from the neurologist; the trial and error with pharmaceuticals begins. I wonder if anyone has found relief in more "natural" products.
I am very sorry to hear that you suffer this miserable condition! 😢 I've had chronic neck pain for the last ten years, and after awhile, I got used to it. The pain became less dominating over time. I am hoping that this pain will, as well.
My name is Jennifer. Reach out to me, if you'd like to talk more on the subject. I'm still a newbie, but I am someone who can relate to what you're going through, at some level.