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Having Difficulty Getting Diagnosis
Chronic Pain | Last Active: Feb 3, 2023 | Replies (46)Comment receiving replies
First, I am so sorry to hear of the symptoms you have been having and I am experiencing some of the same things and had a Tetanus vaccine nearly 3 years ago I believe also caused some of what I have going on today: I live in 24/7 paraspinal spasm (contraction) of neck and face and allodynia (hypersensitivity) on forehead and abnormal sensations on right side of head. My abdomen was contracted for 4 months and I STILL deal with urgency and frequency (although x-ray just revealed significant bone spurs L4 and L5 potentially affecting the nerves there. I cramp frequently throughout my body, have unstable neck (according to digital motion xray stating that all of the ligaments connecting skull to cervical neck are lax or torn and although doctors say traditional MRI reveals a TON cannot attribute this to the contraction of neck and face). I developed an arrythmia (premature atrial contraction) and have palpitations every day/all day impeding my ability to get to sleep and awaken me every day. Dr. tell me PAC are benign (although articles say increased risk of developing AFib). Therefore, I stopped working out as walking up my stairs triggers them. I used to lift weights 3 days per week and cardio the other 3. I have been denied by Mayo in Arizona TWICE.
As nobody has been able to help me, I paid for my own labs...routine blood tests find only Vitamin D deficiency and high cholesterol. Dr. said buy any over the counter without dosaging advice to correct. I've started taking a quality multi as well as Vitamin D and calcium (I'm post menopausal). You can test for some additional things on your own such as micronutrient test, hormone etc through companies like "anylabtestnow" at personal expense then bring results to your doctor. Do not start supplements until speaking with them. I have also suffered from gastroesophageal reflux disease fairly consistently for 10 years...google Dr. Sanjay Gupta...I just found his video on YouTube suggesting a correlation between acid reflux and heart palpitations. Since I started taking acid reducers again as well as multivitamins, my heart palpitations are not gone but "quieter." Good luck.
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@deborahfischer I also have muscle contractions in neck, shoulder, arm, hip, leg- all on left side. And "paresthesias" including intense numb sensations on left side of face (CT didn't show tumor).
I don't have the energy to pursue diagnosis and treatment honestly. Currently dealing with PT who doesn't get it. I do have a lupus diagnosis and two docs have suggested MS (other symptoms such as dizziness and nystagmus). But I doubt the MS. I have baclofen on hand but cannot tolerate more than 5mg once in awhile.
I have afib once a year and it is dramatic, so I end up in ER with high heart rate of 180 and shortness of breath. But it is not the end of the world. I started taking potassium in the form of low sodium V-8 (high level in that) and take magnesium at night. Knock on wood, no afib for 18 months. I also never eat after 5 or 6 because late eating is a trigger.
Be careful with acid blockers. I use Zantac or Pepcid but only as needed. Early dinner, Tums and sleeping angled up all help. Good luck! And let me know of any suggestions for me!