Prostate Cancer- getting help-questions answered

Colleen, I was fortunate enough to be at Mayo Rochester for radiation therapy last week when the prostate cancer support group met in person for the first time since COVID. Interesting, they also did it on Zoom but the Zoom didn't work. IT (information technology) was not involved but I think they could have easily fixed it.

Dang. Thanks for letting me know. We'll work to get that fixed.

Colleen, it says there is a prostate cancer support group meeting right now but there is no Zoom link posted.

Hi @dd2312, I'm sorry that I'm only seeing this now. I will ensure that the future meeting have the link included.

I was on abirateron for two years. Now on apaulutimein (?) (Ebearlea) for no apparent reason. I could not take the recommended dose as it made. Me very nauseous and so I split the medication two pills in the morning and two pills at night
I have become convinced that my doctors are treating me, and not trying to cure me . So I have started my own research into cancer cures and have added more vitamins, even more stringent, diet changes, prayer, etc. My numbers have been on a downward trend since I started my cancer cure. Thanking I’m not putting this out there to criticize, but to bring awareness. I do think these huge cancer center buildings have to pay for themselves and the way they do it is treating you not curing you.

Would you mind sharing what vitamins you are taking?
I was on Bilutamide for 2 months, PSA 72 down to 28 then switched to Zytiga
and my blood pressure increased and PSA up to 37

Honestly your dr or drs need to be more aggressive in their treatment! I sought multiple opinions at 11 PSA
I first cut out sugar including very little fruit ( so I could eliminate natural sugars as well)
I restricted carbs a lot, but I did not eliminate them. I increased salads with olive oil, vinaigrette, type dressings. No sodas, no, french fries, almost no beef, or processed red meat of any kind, increased consumption of fish. Then I saw a naturopathic person and added magnesium glycinate (specifically) a super B complex, double the daily dose of vitamin C, with rose hips. Multiple vitamins, saw palmetto, iron, D3, melatonin, and two I don’t remember how to spell. I take the majority in the morning with a small breakfast. The chemo pills I take have the side effects of increasing belly fat in men or women, it’s just a side effect and so you have to eat less and exercise more. Walking is good dumbbells are good. I am still researching minerals to take and I am going to add a broccoli pill or a plankton pill I am going to continue this research on cures. No sugar seems to be the most beneficial first step

If diagnosed as stage 4 castrate sensitive metastatic cancer in spine, how can it be cured, but only controlled.

I am on Zolodex again after L2 lumbar nuked taking out 1 inch PC 5 years ago had 40 sets of radiation and WAS FINE psa <.02 Now 1.2 RISING TO 5.23

concerned GETTING CT SCAN AND BONE SCAN AGAIN DEC 5TH

Please share more

First, I want to say something my doctor told me. And several told me the same thing, bone cancer isn’t treated until you have pain they just let it go and that is the common practice. So getting Medicare or insurance to pay the bill for treatment or a process to curate is difficult, I do not understand why they don’t care about the growth of the cancer only the amount of pain. I personally have stage four castration resistant invasive aggressive prostate cancer that has spread to my bones and it is in multiple spots around my body which they won’t radiate so I know I’m headed for more trouble and less I can do some thing to stop the cancer cell growth I do have two separate spots on my spine with cancer. My L3 and L4 and then my upper neck vertebrae. I cannot get them to treat these areas because they don’t have pain yet. We have site insurance approval and it doesn’t come , between hospitalization and doctor charges and pharmaceutical charges it will be around $100,000 to treaties and that’s beyond my reserves so there’s that. This has fostered me to look for a cure. Your numbers are still relatively low and yet you have had some serious complications , your diet will definitely be different than mine but I would do some research and see a good naturopath or holistic practitioner. The number one feeding source of cancer is sugar, so eliminating sugar and most carbs which are transformed by your body into sugar is your first step, and your very best step .