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Treatments for Carcinoids

Neuroendocrine Tumors (NETs) | Last Active: 6 days ago | Replies (53)

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@hopeful33250

Hello @dbamos1945,

I understand that you are looking to connect with others who have had NET tumors in the small intestine with liver metastasis. Is that correct?

I have had three surgeries for carcinoids in the duodenal bulb, however, there has been no evidence of metastasis at this time. I would also like to introduce you to @patrick031621 who also has liver metastasis. I hope that he will post about his experience as well. We have some other members who have also discussed NETs to the liver, @mkmn @pjsheridan2022 @immmm @gulzar.

How long ago was your NET in the small intestine discovered? Did you have symptoms that led to this diagnosis?

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Replies to "Hello @dbamos1945, I understand that you are looking to connect with others who have had NET..."

Thank you for sharing your information. 10/07/22 2nd opinion verified tumor as Carcinoid. PET revealed liver metastasis. Only symptom was recurrent episodes of diarrhea for over a year.
I will try to reach Patrick. Thank you!